Friday, December 01, 2006
WORLD AIDS DAY
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It Is World AIDS Day. The photos are of What matters, the FACES of AIDS.The Children, the Orphans, and Women are dying daily.No Children should watch their parents die. But who will take care of these children, why are they being left behind by the rest of the World ?How many of the orphans in the pictures above are already dying I don't know ( they all are AIDS orphans). This disease has staggering statistics now, 25 million dead in the past 25 years,39.8 million are infected Worldwide, ONE Million are living with HIV in the US, and yes it has risen under Mr.Bush's Regime. 570,000 children under the age of one are infected in the World, and a child dies every minute.It is a Problem that is Worldwide now. We should not be fighting Wars, we should be fighting this Pandemic. AIDS is not just about a Disease, it is about Poverty, Malnutrition, Economic Starvation and Joblessness,Disenfranchisement and Education Issues, and also the Need for Healthcare to be a Right.
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SOME KIND OF TROUBLE.....
I am an old Nurse, I was a Nursing student in the 1980's when HIV evolved into a Horrorific event. I was working as a nursing assistant on a Inner City Oncology floor , it was winter time and the End of Disco. Young Men, thin, beautiful were ending up on our floor, dying of wasting and pneumonia. They were placed in strict isolation and dying without a diagnosis. Their friends did not come visit , they died alone. I remember thinking that this was something Bigger, a tip of a Ghost Iceberg of immeasurable magnitude. " I'll be home for Christmas" reminds me of being 21 holding the hand of a Young Man named Paul that was only only two years older than me. It was Christmas eve I sat with him waiting for a Priest to come. I sang the song over and over because Paul liked it. He would squeeze my hand everytime I finished. I would sit and look at his skin, the blue glow that outlined his bones, and wonder What had done this to him ? Mere weeks ago he had been dancing at the Hippodrome with his friends. He had had Lovers, could Love have killed him ? I remembered thinking that. I was working with an older nurse, and I voiced this worry to her, and she said " Well, honey if Love is killing folks - then we in for some kind of Trouble."
THE TROUBLE HAS A NAME.....
After working in the inner city of Baltimore for a few years, the Disease began to mold it's course and fate, it became known as HIV, and AIDS. Men that were dying were able to know WHAT was killing them. But even a cough was viewed with incredible fear. I moved North took care of children, and babies in New England. But I was still haunted by this disease. By the late 1980's I had moved to Seattle Washington, and AIDS was more than Real it, it was a Daily Battle but atleast now there was a medicinal aresenal and better care to be given.
I was working at an AIDS Hospice and in the ER. I was working at a Needle Exchange on my days off. I was spending my days off going to highschools and teaching about condoms and also standing on a corner on 3rd ave by the Pike Street Market trying to teach Working Girls that spermicides would save their lives and not to use Lambskin condoms. Yet between the ER, the Hospice and living inner city, I was surrounded by this disease, it was inevitable that I would embrace it. By now I was married and I kept thinking this Disease is not just about gay men, and drug users, it is also about women and children. We had arguments at the Hospice because my global concerns were not considered relevant. ( There were only two of us that were staight that worked at the Hospice, and I was annoyed that they were losing perspective on the bigger picture, it's a People's Disease). A hospice is different- it is a place that has to be a Home while providing care and comfort in someone' s dying moments. And these early AIDS hospices also often provided care and comfort after families had abandoned a loved one. It was one of the better places for me as a nurse, because there was a garden, and a kitchen and books, I could care for my patients in other ways. It was a Home. But trying to reach and teach families and help them get past stigmas and myths and their own bad judgement and misconceptions was another part of the Battle.Illness should never Isolate.
After I worked at the Hospice I moved to Homecare, because I was more appreciative of trying to keep people in their own home. And I worked with AIDS and Cancer, but it was not about people dying, it was about helping people LIVE as long as possible on their own terms.But I was also watching the Religous Right start to effect the Care by effecting the Prevention. Abstinence Contracts Kill young people, I can give you names. I beleive in Condoms as a way to protect, an attempt to help keep people safe, Condoms are not just about Sex, they are about Health. If you have a teenager, and you love them , you will go buy condoms with them.Buy them the expensive ones that have been well tested. Explain that vaseline and oil based products destroy the surface. Explain that Spermicides help prevent STDS, and can be used safely with condoms. If you need to demonstrate and teach I recommend bananas, and cucumbers ( not the waxed ones- they are too slippery). The "Trouble" is more than Out There, it is thriving, and we need to protect our Children.
FINAL THOUGHTS....
I could write on and on about this for days....I have spent most of my Nursing career taking care of AIDS patients and fighting it.....There are Faces I still see at night., not just patients , but also friends....and names....hundreds of Names....There are not enough Tears.
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25 comments:
So the Protected Statue- do you recognize it ? If you think you do take a guess...if you are right, it could win you free condoms....
Thank you Enigma for putting a real face on the many people who work with AIDS patients every day. Thank you for all the time you spent trying to make someone's dying days as comfortable as possible. It's unacceptable to think 20+ yrs have passed & no cure, no vaccine, only expensive drugs to manage the disease.
I remember well when the news finally reached the public of what this disease was all about. There was a little chart that showed you were at risk for any sexual encounters you had for the previous 7-11 yrs. This shocked the hell out of me because it meant thinking about what you were doing & who you were doing it with clear back to 1972!! It was at that point we all realized the potential for worldwide pandemic.
And yet (and I hate to bring this up because it still upsets me all these years later), I still had to listen to so-called friends yapping that AIDS was god's punishment for homo-sinful behavior. It's upsetting because I didn't have enough knowledge to factually destroy them. This was 1983-4.
Yes, not enough Tears ... and definitely no real commitment from our govt to fight it either.
ps, no I don't recognize the statue, but I like the message ~~ D.K.
DK: you hit the nail on the head- I can not believe that I am teaching my son about condoms- not because I am teaching to be responsible- but because a disease is still ravaging the damn planet- and 25 million dead...20 years later- and no vaccine....abstinence contracts my ass....
Thanks for stopping by!
Alas, to worry about War in another country, while money is needed in our own country for Education, and you know the list goes on.
Best country my ass ; (
Can't bother to help needy people in any country, and all the problems in Africa for all these years, and nary a word about helping those poor people.
And forget doing anything positive anywhere, it's always devastating and then they have to fend for themselves for many years to come. Oy Vey!!!
How disgusting! ; (
Coffee Friend- you wit and sarcasm are killing me...and your wisdom- yeah, the " best country" spending money on things that matter...ie. people, kids, education, healthcare...
THE STATUE....with the large condom...a very large condom.....hints....South America...
It takes a special kind of person to do what you have done. Sadly, we don't ever have enough to go around. I wonder if when you get to the end of your life (I hope that is a long, long distance away) that you find out that you are an angel and never knew it. It takes just that kind of special person in my book. I remember in Haiti, when people found out their infant had AIDs, they would place the child on the street and hope we would come and pick it up. They were so afraid and rightfully so as they had no means of caring for the child. It is tragic. Some kind of trouble is right.
Ahhh Mary..it is not about me, but thanks for your kind thoughts, I try to share some of my nurse stories because strange enough they are somehow relevant- they are about the human condition...what makes me so sad is that It should have been under some kind of control by now...some kind...
Isn't the Big Condom in the Sky statue in Amsterdam? I'm guessing here...
I'm taking a little time today to remember the ones who are gone. You guys are right; what the f*ck is wrong with priorities in this country?
Your dedication is to be admired, and must come from your soul, for the people that pay you, feel you are just slightly more valuable than fast food workers.
Although I'm straight, HIV and AIDS free, I've had occasion to spend considerable time in hospitals. Nurses run the place, they make the place, they catch Doctor's mistakes.
AIDS, like everything else it seems, has become politicized. And with politics, comes no truths; only deceptions. Now that we are under the repressive thumb of Evangelicals, the absurdities only increase. As they brainwash and coerce young people to sign abstinence contracts, they forget the very emotions the God they claim to represent, has put into every human being. They are unequaled in stupidity, save possibly for Nancy Reagan's infamous "Just Say No." I was in my Truck when I first heard that, and I about fell out the door!!
Sexual ignorance in the religious community is unequaled. I don't have the slightest what it will take to eradicate HIV and AIDS; I only know that paper contracts won't do it, and as of this writing, we don't have it.
And I hope someone like you is there when it is my time to die. You are the definition of Pure Class, and Compassion.
Mel: Good to see you- that was my first guess too...nope.and about those Fucking priorities- god only knows my friend....
The Future: Wow...such kind words and I loved your honesty about this...I am merely a nurse, I do what I can cause I care, whether it be AIDS or Katrina, and I also learned a long time ago that I care with my whole heart- and that means passion and sometimes Anger. And yes, I have alot of anger about what the Religous Right has done to this Country...and that Real People have been hurt by their judgemental ignorance.This day for years has filled me with rage and tears...thank you...and thank you for saying "Class" , it is not a term that nurses ever hear....Bless you....
You certainly are spunky Enigma...good pitures...enjoyed what you had to say very much.
This is one of the most eloquent and real posts I have ever read about HIV/AIDS. It has been nominated for the International Carnival of Pozitivities (ICP)by Brad of AIDS Combat Zone and I am honored to include it. Thank you for speaking out.
Please email me at ron(dot)hudson(at)verizon(dot)net if you do not wish to participate in the ICP. I have provided the link below for you to read the goals of the project.
Safe Journeys!
Ron Hudson
www.internationalcarnivalofpozitivities.blogspot.com
At the risk of great redundancy here, I must take a second to echo The Future Was Yesterday and other's sentiments. Until 1997 my only connection with saints was through what I read/heard/saw occasionally. But that year, as my brother lay dying with cancer, I got to experience first hand being in the midst of those saints and angels when a small group of them swooped down around him.
They came to him from Hospice and they were heaven sent. They enabled him to die there, in his own home, surrounded by loved ones and deeply caring professionals who made him as comfortable as humanly possible under the ravages of that dreadful demise. And it was all because of the aid of those angels. And I grew to love each and every one of them who attended him. And through them, I saw the true altruistic potential for what mankind could be. And I know my brother felt blessed to have had them.
And while you may try to humbly deflect our deep admiration with assurances like, "Ahhh Mary..it is not about me," rest assured you're a very intregal part of this big picture, Enigma, because saints and angels are rare among us. Yet when encountered, the dying - as well as the living - embrace them for what they are: a hint to what we might all strive to become! And we come away knowing we've encountered someone *very special* indeed. Bless you enigma, and thank you for sharing your caring.
And now we learn from latest World Health Organization estimates more of us, not less as previously thought, will be dying--117 million victims of AIDS--in the next 25 years. Thirty-three percent of any Bush dollars spent in the fight against AIDS must be allocated towards abstinence at the expense of other more valuable, life saving programs like prevention of mother-to-child HIV transmission.
With the gloomy predictions for our AIDS future, it leaves one to wonder, "Where will we get all the saints and angels that we will need globally for those who will suffer and die, many needlessly?"
This is just another area that the Bushbots have failed in the biggest way. The fact that crack and drugs like that are cheaper than the treatment of life ending problems is a testament to the lack of care and the sucking up to big pharma. Disgusting!!
Donnie: I agree with what you say- and my son pointed out that this is not just World AIDS Day, that it is METH awareness week, or is it month ? Anyways, nice the Bushbots have managed to mangle, bungle, and mismanage every single problem that has been handed to them. ( I love your Bushbot term- says it all).
DADA: wow....I don't know what to say. I am so grateful that your brother was cared for with such love and respect, and that you as family were tended to as well.Dignity is such a rare treasure, and we should all have it in death. I do not think I am an angel ( and we know from my language that I am no saint.) That being said I can also admit that I am called to what I do, and it was never ever just a job....but that it matters to others I am humbled....namaste.
RON: I emailed you offline, but anything that shares the stories of this disease, and helps all of us dialogue and remember all those that are involved matters deeply to me....so I am honored this little post or blog are even nominated...Share far and wide with my blessings and Hope for a better future.Thank you again. ( I will head to the AIDS Combat Zone, and Blogger wiling I will Link to it as well).
SUMO: Good to see you, I have been visiting you- but I still can't comment...but always good to see you here. Hmm, Spunky- I like that....pissed off red head with a Scottish heart trying to do a bit of good in the world...yeah I guess I have some spunk....thanks again...
RON: If you stop back, I have to say I am very impressed with your Blog, the Carnival and your blogroll, wonderful. I will be adding you to the Blogroll as well as I encourage everyone to click over to your blog- really fine work. I am going to try to link your blog to the title of this post...to help get the word out...but I also confess I am not great at the links process. Blog on.....
I remember when AIDS began to ravage my fabulous gay friends in the mid-80s. I remember the triumphalist mewling of the cretinous televangelists and the unforgivable silence of Ronald Wilson Reagan. May they rot in hell. I also remember Russell D. And John Z. And Johnny R. And so many others. May they rest in peace.
KVATCH: Quite simply - they are ignorant- idiots- worthless....Criminal Negligence...Katrina, 9-11, Iraq, Healthcare&AIDS, Stem Cell Research- gooz you have to wonder how many of us will die due to their negligence and ignorance.
BETTY: I love the phrase cretinous televangelists- wow- that says it all....and yes, I too remember Reagon and his unforgivable silence- and I remember that he treated mental health and illness the same way- and in my heart I was never shocked that he should suffer and die of something he so abhorred and ignored- Alzeimers...His own Denial did in a way lead the way to his fate...I see you too carry names in your heart...I am so sorry for loss of your fabulous friends- gone too soon....Namaste.
wow. powerful post. thanks.
Great post E... and thanks for the kind words about my AIDS day comment at DivaJood's place.
And for the Nurse Enigma: All is well with me and Baby to Be... I am being a very good pregnant patient... so no drives down my way are needed... yet :)
Betmo: Thank you for coming by and for appreciating this post....
TINA: ( and baby2).....I am glad that you and Baby-on-way are doing okay....Take care...( Here if you need)
great post and pictures
So much loss, so many wasted lives all because people attach a stigma to this disease. What nonsense. A beautiful post, my dear.
Dear Lola and Graeme- thank you for coming by and yes, thank you for appreciating a post about such a sad miserable issue....should not be that way...namaste.
hmmm, no winner on the Statue....
oh well...
Buenos Aires.....
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